Netherlands, Amsterdam

Rare diseases

when 17 July 2016 - 23 July 2016
language English
duration 1 week
fee EUR 585

For the complete invitation package visit our website ifmsa.nl/iamsummerschool.

During the I AM Summer School the participants will be offered an innovative educational program.
The week will only contain a small number of classical lectures and the students are expected to fulfil
an active role. They will be challenged to enter into dialogue with the different stakeholders, become
an expert in a specific field and teach their knowledge to fellow students. It will be all about analysing
problems from different perspectives and seek solutions, all on a basis of patients with rare diseases.
Prior to the summer school, the students will gather information about the subject at home in order
to get the most out of the week. They will do so via guiding assignments send to them.

Each day of the educational program is composed of three components: specific knowledge, the
common theme of approaching problems from different perspectives and other activities to acquire
additional competencies. The first days a baseline level of knowledge on rare diseases and the different
stakeholders involved will be created.

On the first day the participants also will be divided in a group of a particular stakeholder. They have
to get to know as much as possible of this stakeholder and his/her perspective and they will have the
opportunity to enter into conversation with an expert in that field.

On the third day the groups will be redistributed and the participants will be introduced to a new assignment
in which the knowledge of the different stakeholders is needed.

Besides this common theme, there will be time to work on other issues in modern health care, such
as how to deal with a very empowered patients and what to consider in ethical problems for patients
with rare diseases. There will also be an interesting trip.

Day 1 – Arrival day
The first day will start with a nice evening program to welcome everyone in Amsterdam and to get to
know each other.

Day 2 – The start of the Summer School
After a short introduction the day will start with some clinical lectures about different metabolic
diseases. Just before lunch the participants will be divided in a group of a particular stakeholder. They
have to get to know as much as possible of this stakeholder and his/her perspective and they will have
the opportunity to enter into conversation with an expert in that field. To help the participants with
that, all the different stakeholders will introduce themselves in the afternoon. The day will end with
giving the participants the possibility to speak with different patients about their experiences with
doctors and healthcare in general.

Day 3 – Presentations of the different groups of experts
The day will start where the last day ended, with patients, this time by a clinical lecture from a patient
and after that multiple patient organizations that will tell something about how they started and
in which way they create awareness. After the information from different patient organizations, the
different groups get the chance to talk to the different stakeholders individually to become more and
more an expert. After lunch there will be some time to finalize the presentations and then everyone
can share their knowledge with the rest of the groups.

Day 4 – Multidisciplinary consultation
After a lecture about the ethics that play a role in the treatment of patients with rare diseases the
groups will be redistributed and the participants will be introduced to a new assignment in which the
knowledge of the different stakeholders is needed. After some time to think this assignment through
the participants get the possibility to see how important it is to involve different types of doctors in
patientcare during a multidisciplinary consultation. In the afternoon everyone will share some stories
about personal experience with patients with rare diseases and about how the care of patients with
rare diseases differs between countries.

Day 5 – informative trip
At day 5 we will leave Amsterdam to visit a stakeholder at their own company and in the afternoon
there will be plenty of time to think about the new assignment or to see some more of the city.

Day 6 – Last day of the Summer School
At the last day the participants will practice with the communication with patients by a patientdoctor
role-play based on situations where the patient knows more about their own disease then the
doctor. After this practice it will be time to finish their final presentation and the Summer School will
end with the presentation of the solutions of each individual group.

Day 7 – Departure day

Course leader

Prof. Dr. M. Maas (MD) & Dr. G. Linthorst (MD)

Target group

All medical students

Course aim

The aim is to prepare future doctors to a healthcare in which patients, doctors, pharmaceuticals, scientists and politicians play an intrinsic role. We will accomplish this via the study of rare (or orphan) diseases. I AM Summer School will prepare its participants for patients that know more about their disease than they do and how to handle and empower them.

Fee info

EUR 585: The fee is a maximum of 585, pending sponsorships and foundation donations. The fee includes the summer school costs, stay in a hotel (private room), breakfast, lunch and dinner (every day a new restaurant), coffee & tea, social programme and an excursion.